PPMI & MJFF

What is Parkinson's Progression Markers Initiative (PPMI) -

Thankfully, I've not been diagnosed with Parkinson's, but sadly my dad was stricken with this dreadful disease. My participation is perhaps a way to keep honoring my dad and in some small way to help the powers that be better understand this disease, so that one day a cure can be discovered.

You do NOT need to have PD in order to participate in the the Parkinson's Progression Marker Initiative study.

I've been participating in the online survey's since December of 2021 (not sure why the screen shot below shows only 3 years) and just yesterday morning I completed another set of survey activities. Participants complete sets of questions on health and disease in PPMI Online every 90 days -

The Parkinson’s Progression Markers Initiative (PPMI) is a landmark research program from The Michael J. Fox Foundation for Parkinson’s Research (MJFF). PPMI launched in 2010 to better understand Parkinson’s and develop new treatments. Since then, the program has changed what scientists know about the brain and how research is done.

PPMI follows people — with and without Parkinson's — over time to learn more about how disease starts and changes. Gathering information over time helps us discover how brain disease starts, changes and, most importantly, how to stop it.

#Blessed

AH AH AH Choo!

I finally completed and submitted my results to the scratch-and-sniff smell tests.  I volunteered to participate, which is a part of the Parkinson's Progression Marker Initiative (PPMI), a landmark study from the Michael J Fox Foundation for Parkinson's Research.

I've been a participant in the PPMI studies for several years now and complete quarterly online questionnaires focused on PD.

The test came in the mail the day before I left for Miami and I just now completed!

A set of (4) scratch-and-sniff booklets, each with (10) smells to identify -

This is what one of the individual pages looked like.  Using a #2 pencil that came with the kit I'd scratch the brown label, which released the odor, then sniff to identify the smell.  Then choose the odor (or the one closest) from the four options listed on each page.

It was comical that half way through scratching these cards, Trixie was roused from her sleep and was intrigued by all the odors.

I'm hopeful these tests and the PPMI study eventually lead to break throughs in eradicating the terrible disease that is Parkinson's Disease!

The Parkinson's Progression Markers Initiative (PPMI)

Join the Parkinson’s Progression Markers Initiative (PPMI), I did!

Get started today https://bddy.me/3zHVIDW

April is Parkinson’s Awareness Month

April is Parkinson’s Awareness Month

For the fourth straight year, both houses of Congress have officially declared April Parkinson’s Awareness Month.

Move To Beat Parkinson's

Did you know that April is Parkinson's Awareness Month!

Visit the National Parkinson Foundation for more information on the disease and what you can do to help!

Parkinson Disease Wristbands

Visit The American Parkinson Disease Association (APDA) - the Massachusetts chapter and order a "Steady Strides for Parkinsons" wristbands to show your support to aid Parkinson’s Disease research.

American Parkinson Disease Association - Massachusetts Chapter
715 Albany Street Suite C329
Boston, MA 02118
1.617.638.8466
1.800.651.8466